Eli’s out with a friend and his friends family for the
evening, so I’m on the couch with Ralph again. Eli was more than happy to
escape. We’re at the part of summer that’s not warm enough for going to the
pool and trying to find some sense of normalicy with endless time to spend
reading, catching up on unwatched videos, and going for bike rides while mom
yells from the back of the side walk to stop at the corner. Eli’s such a good
sport biking in front of his sister and sitting patiently at corners to wait for
her, knowing she’s too tiny to bike on the street.
This is the same protector that walked into the orthopedic
clinic with Sidney and I on Monday. Both kids behaved awesomely which was great
as I was by myself this trip. The university hospital is an easy hour from our
home, but by the time the car is in the ramp, and we are finally in our exam
room, I’m feeling a little frazzled. Eli was every bit the co-navigator,
conversationalist, and helper a person needs along on a trip. He looks forward
to going with us. Somehow I feel as a parent having a sister with unique
special needs will make him a kinder more accepting person as an adult.
The other day, we were talking and he told me he forgets his
sister has three fingers. That’s the first time he’s ever brought it up. He also
forgets there’s anything complex about his sister’s condition like everyone
else. Maybe that’s why it’s so bizarre on days like Friday when Sidney’s diagnosis
is written on a form as a “complex deformity.” Frankly, I hate the word
deformity, but I know the medical world has its own set of labels.
After a few x-rays and an exam by the and surgeon, Sidney’s
hand has healed well. For now, we will have a splint made which will allow us
to monitor her hand. Meaning, the surgeon suggested we put the splint on her
hand about once a week and see if it’s getting tighter. If the skin begins
contracting again, and the splint is tighter, she recommended we try additional
physical therapy. For now skin which caused her finger to contract looks great.
Like I said before mother nature will probably always cause her finger to crook
in, but the surgery accomplished more mobility in her finger.